Wednesday, November 11, 2009

Lest You Think It's All Sickness and Hospital Stays Around Here...

It's surprisingly not.

Somehow, amidst the weekly chemotherapy treatments, the days spent learning to "administer hydration," (a euphemism for "Suzy Gets to Stick Needles in Stu"), and the feeling I should put a cot in our pharmacy and simply sleep there, life goes on.
This month, Casey turns 18. Next month, Cuyler turns 11. And right this second, Stu's turned the corner and is no longer sleeping most of the day. Now he spends almost a full eight hours awake and making me insane. What's that pill? Why do I take it again? Are you sure you're not trying to kill me?
Really, it's ok. The badgering is so much better than being lonely.
Of course when Stu is asleep, I do my best to stay entertained and not spend too much money shopping online. I clean (yuck), I write (at this point I think I've got three books in various stages of completion on my computer), and I look for ways to better myself, improve as a person, and maybe even help pay the bills at some point.
Yes, you've got it. I've applied to grad school.
The package in the blurry picture above contains my transcript, several letters of recommendation that are SO good I simply must meet this Susan McCorkindale sometime, a copy of my book, a chapter from one of my next books, and an application for a Teaching Assistantship.
My hope? To go to George Mason University for an MFA in Creative Writing. My goal? To teach college someday.
If I get in, great. If I don't, I'll find something else to distract me. The point is that despite the fact that life's a little rough, it's still good, and it's still going forward. For all of us.
Now if you'll excuse me, I've got to drop Cuy at football and hit the pharmacy. And yeah, I may just bring my bed.

Tuesday, October 27, 2009

One gallbladder surgery, three ERCPs, an aborted Whipple, one round of Chemo, three kidney stones, and a dozen dead chickens later…

We're here, and we're hanging tough.

Ninety days ago today, my honey had his gallbladder removed. It was supposed to be a simple procedure. Just wham, bam, he's in the recovery room ma'am.

It turned out, quite simply, to be anything but.

Since that time, I've learned a few things. Nothing earth shattering. Mostly stuff like "shit happens," and "a friend with weed is a friend indeed," (for medicinal purposes, of course). To commemorate the three month mark, I thought I'd share some of what I've picked up. And sure, I hope you laugh. But I really hope you and those you love never need to know any of this nonsense.

The second the C-word is spoken…
You're promoted to Caregiver. There's no raise and no one absorbs your old responsibilities. In fact, the job comes without so much as a how-to pamphlet or a packet of NoDoz. To survive your new role as Super Spouse, remember two things: one, it's not a sprint, it's a marathon. And two, even caregivers need caregivers. (And those bearing wine are particularly welcome.)

Go home and have sex. Seriously. If I had known on July 26th how our lives would be turned upside down on July 27th, there'd have been a whole lot more adult fun on the farm. Think the kids are cool with M&Ms for dinner? Me too. You get the masks. I'll rustle up some rope!

Get your ducks in a row. If you think doing your wills while you're both healthy is hard, trust me: doing them when one of you is sick is excruciating. Don't wait. Do it now. Then go get good and drunk.

And on that note… Do your Power of Attorney and Advance Directives, too. You'll need another round of Woo Woos, but it's worth it.

Check your checking account. If your joint account hasn't been set up "with survivorship," fix it. Otherwise, if something happens to the main account holder, the bank will freeze your funds. And paying for that case of La Crema could pose a problem.

Your ten year-old will want a cap that says "Cancer Sucks." You'll say no, 'sucks' is not a nice word. He'll say 'My dad has cancer' are four even worse words. You will buy him the cap.

You will like the cap.

In fact, you will like the cap so much, when you get a second (as a gift!) you'll announce, Kids, it's time for your Christmas picture!

Even the dogs will get in on the "get well" gift act. Because to dogs, nothing says, Cut the cancer crap like the bottom half of a dead chicken dropped at the front door.

Pack an overnight bag and put it in the car. It makes surprise stays at your sister-in-law's easier, and it'll stop you from stealing her stuff. About the sexy blue tee and the Chanel blush. You didn't want those back, did you? I mean, they're covered in Suzy cooties now …

It no longer matters if the Giants win or lose. Just that my kids get to watch the game with their dad. Ok, it would be nice if the nimwits would win…

Dinner in the hospital becomes the height of romance. So what it's mushy mystery chicken for him and a questionable Caesar salad for me. It's nothing short of the happiest, most romantic meal in the world. Particularly when he hasn't eaten one in eight weeks.

The ten year-old wearing the "Cancer Sucks" cap will want a cell phone. Why? Because the cell phone is the new security blanket. Necessary when Dad's in the hospital. The perfect paperweight when he's home.

You enter the wonderful world of prescription narcotics. Stu's stash of OxyContin has a street value of $9,000. Hmmm. Pain-free honey, or Manolo-heeled mommy? Of course I'm kidding. I can buy twice as many Kate Spade's with that kind of cash.

You develop a new appreciation for those annoying quotes girlfriends forward each other more frequently than Kohl's sale coupons. Not all of them, of course. Just this one:

Yesterday is history, tomorrow a mystery. Today is a gift.
That's why it's called the present.


Thank you for all your prayers, cards, and concern, help with the kids, and even your calls. (Eek! The phone!) Stu starts his second round of chemo on Friday. God bless him, he's still got his sense of humor (not to mention his gorgeous hair), and that's half the battle.

Of course I'll keep you posted. Just try and stop me.

Love, Susan

Saturday, October 24, 2009

You know you're overtired when...

You discover the dogs disemboweling a chicken and think, Thank God. Now I don’t have to lug that damn big bag of dog food.

You give the remaining Kibbles 'n Bits to the cats 'cause you're out of Little Friskies and you just can't count on your two pacifist pussies to go kill their own grub.

Your son asks if you miss the goats and you respond, what goats? Because you really, truly can’t recall Ever. Having. Them.

Your kids want cake for dinner and not only do you say yes, you – the fitness freak – go get three forks.

You go to put the handle of your Schick Slim Twin in your mouth so you can use both hands to lather your legs, and you bite down on the blade.

It’s five o'clock in the morning, you’re half way to the hospital with your husband who's sick with pain from, what you'll soon learn, are kidney stones of all goddamn things, and you’re wondering why Rte 66 is so dark. Hmm. Might help if you turned your headlights on.

The message light blinking on the kitchen phone makes you cry.

The messages themselves, from folks worried you're as overtired as they think you are, also make you cry.

A cop pulls you over for writing this list. While driving. He thinks you're texting and isn't relieved to learn you're "just good ole fashioned paper and penciling." He lets you off with a warning and a stern, "Lady, go home and get some sleep." Which you intend to do. Right after you post this silly piece.

Thursday, October 08, 2009

Top 20 Things I've Learned in the Last Three Weeks

1. If you have to be sick, and I hope you never do, Fauquier County is the place to be. Our friends are incredible. And the friends we’ve never met and didn’t know we had are, too.

2. Just because a hospital looks good doesn’t mean it is good. Georgetown’s décor is Early Iron Lung. But the medical care and staff is four-star.

3. My sons will eat baked ziti. But only if my friend Denise makes it.

4. A “Whipple” has nothing to do with toilet paper.

5. When your kid says, “Mom, dad’s laying on the bed funny,” you’re going to the hospital.

6. You can make a 90-minute trip in 45-minutes. But only if you’ve had enough chardonnay.

7. The only thing tougher than being told your husband is sick is telling your kids. (And breaking the news to your folks is no fun either. Trust me, you will say “I’m so sorry for having to tell you this,” at least six times in the course of the conversation.)

8. If you can run out of pain medication over the weekend, you will. On Sunday. During the Giants game. When not a single pharmacy in the free world is open.

9. Four Tylenol PM will buy you six hours of peace. And one hour of vomiting.

10. People who tell me my husband looks good are lying. But it’s only because they love me. And I love them, too.

11. Verizon voice mail can hold over 100 messages.

12. “It must be tough taking care of dad 24/7” is code for “I need you too, mom.”

13. Three thirty in the afternoon is a perfectly good time to start drinking.

14. You can actually forget which friend has your child. That’s why God invented cell phones.

15. I am a terrible deletagor. Thank God my friends Ellen, Trisha, and Wendy are not.

16. There are angels among us. They masquerade as pancreatic disease program coordinators, and they keep their wings and halos hidden, but they’re there…

17. Single parents deserve big props.

18. Nurses rock.

19. The medical personnel coming in and out of my husband’s room saying cancer this, and cancer that, really are talking to us.

20. When all else fails, laugh.

Wednesday, October 07, 2009

It's Breast Cancer Awareness Month...

But is this any way to save the Ta Tas???

Saturday, October 03, 2009

Puzzled by Kudzu? Me too.

The following piece appears in this weekend's Fauquier Weekend paper. Top of page 3. Check it out!

“Mom!” I was sitting at my desk when I heard my ten year-old, Cuyler, and his best friend, Jeff, come racing into the kitchen. “Hey, mom!” he shouted again as I caught the familiar sounds of the refrigerator door opening, slamming shut, and the pop! hiss! of two cans of Coke being readied for rapid consumption. “Did you know we have Kudzu on the farm?”

“What do you mean, on the farm?” I shouted back. “It’s in the den.”

In a flash, both boys were standing in my doorway. They were dirty, sweaty, and sucking down their sodas almost as fast as Jon Gosselin replaced Kate. They were also looking at me like I’d completely lost what was left of my mind.

“We have Kudzu in the den?” Cuy asked, incredulously.

“Yeah. Dad has a book of them. Kudzu puzzles. He has crossword puzzles, too. You guys want them?” I stood up and started down the hall. “Come on. I’ll show you.”

“Mom, that’s Sudoku.” He made a circular motion with his index finger near his temple, and mouthed the word “blonde” to his buddy. “Kudzu is a vine.”

I whirled around. “I saw that, dude.” Both boys looked at the floor. Holy cow; they even had dirt on their eyelids.

“They call it ‘The Vine that Ate the South,’” Jeff ventured.

“When you say vine, do you mean Tarzan-swinging-from-the-trees type vine, or the Vinca-we’ve-got-in-the-window-boxes type vine?”

“That depends,” my son replied. “Who’s Tarzan?”

Wisely, I didn’t try to explain Tarzan and they didn’t try to show me how to do Sudoku, an unfortunate pastime that involves math and to my way of non number loving thinking looks about as much fun as having one’s large intestine removed laparoscopically and being forced to wear it like a feather boa.

Instead we hit the Internet and searched on “Kudzu.”

The images of the broad-leafed plant, sometimes resplendent with blue or purple blooms, were both mesmerizing and horrifying, not to mention startlingly reminiscent of the sets in Edward Scissorhands. Picture after picture showed it blanketing abandoned barns, fallen trees and untended pastures all over the South, and site after site described its startling and unstoppable summer growth rate of a foot a day.

A foot a day! And I thought nothing could spring up faster than my seventeen year-old. If it eats as much as he does, we’re all doomed.

I logged off and looked at my younger son and his pal, both of whom were busy adding a lovely orange coating of Cheez Puffs to their filthy fingers. “Where exactly did you two see this stuff?”

In the woods, on the old wagon.
No, it’s an old chicken coop!
Nuh uh. Wagon!

“Guys, guys.” I put my hands up in the universal signal for Stop, or I’ll cut off the snack foods. “Wagon, coop, who cares? Take me there.”

And so they did.

Sure enough, there was an ancient wheeled whatever barely visible beneath some kind of freaky foliage. Was it ivy? Was it Kudzu? I couldn’t tell, and I didn’t want the kids to get any closer. What if the ghastly thing suddenly did its foot-a-day growth dance and devoured both boys right before my eyes?

No, no, better to stand back and plot its destruction, or at least postponement. You can’t kill Kudzu, but you can maim it.

I figured we’d start by getting our goats to graze on it. Then, we’d bring in the cows. When they’d chowed it down to nothing but nubs, we’d finish by letting the hens have at it. That would bring it to the brink of the grave.

And if it didn’t, we’d resort to Sudoku. One look at that stuff and the darn thing will wish it were dead.

Thursday, September 24, 2009

The Leech is Where We Draw the Line

In the past week we’ve gotten some really bad news, but we’ve also gotten good news. (I pray it’s good enough, but right this second, I’m feeling pretty positive.)

The bad news is that my husband has cancer and the evil cells have made themselves at home in his pancreas, liver, and lymph nodes. The good news is that we’re about to serve them an eviction notice via a powerful form of chemo called Gemcitabine.

I’d love to be in there to catch the action when the Big G shows up. But since I can’t, and neither can my husband, we’ve decided to visualize our best chance for growing old together and arguing about who’s turn it is to make margaritas: we’re going to close our eyes and imagine the treatment kicking butt, taking names, and showing those dastardly cancer cells the door.

(If that sounds unbearably ladylike you should know I’d much prefer the Big G vaporize the vile bastards and send them straight to the seventh circle of Hell, but I’m trying to be polite. When it’s time to go completely postal, you can bet I will. It’s just one of the many services this Jersey girl offers.)

We’ve also decided to augment the best drugs modern medicine has available with one or more of today’s alternative cancer remedies. Don’t scowl. Some of this stuff actually works. There are people who were told they had a month to live three years ago who firmly believe they’re still here thanks to a combination of chemotherapy and flaxseed infused cottage cheese.

Yes, regular old cottage cheese with a heaping helping of flaxseed mixed in. Who’d a thunk it?

And that’s not the only alternative out there. There are dozens of them. Oxy E, Co-EnzymeQ10, OxyDHQ. The list is endless and we may try a few. But my husband and I agree: under absolutely, positively no circumstances will we ever resort to the lowly leech.

“I’m not going to Mexico for any ‘Man in the Moon’ stuff, Sue,” he says referring to the Jim Carrey movie about comedian Andy Kaufman.

“After all I’ve done for you, you’d deny me the pleasure of watching some witch doctor pretend to pull leeches out of your belly button? You ingrate!”

“I think it’s enough I’ve agreed to eat that cottage cheese concoction.” He pauses and pretends to put his finger down his throat. “Start pushing stuff like leeches, eye of newt, or green eggs and ham, and somebody’s gonna get hurt.”

Hmm. Green eggs and ham. I hadn’t thought of that. It doesn’t sound too good, but in all honesty, none of this stuff does. Not the chemo. Not the natural supplements. It all screams that my husband is sick. And that simply makes me want to scream.

Any such outburst is going to have to wait, of course, until we’re on the other side of this situation and he’s insisting it’s my turn to fire up the blender. It won’t be, you should know. My man is a terrible turn taker with a tendency to prefer drinks made by his favorite blonde bartender.

But you can bet I’ll comply. I love my cocktail leech. And that’s where I draw the line.